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PostPosted: Tue Jul 12, 2011 9:56 pm 
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I am 25 years old male from India.

I don't know if doctor gave up and said i have fibromyalgia or really he found the cause.

I have been visiting doctor from almost two years for my constant pain..

1) In 2009, it started with back pain,neck pain and consulted a spine specialist and he said i have mild scoliosis.
I visited this doctor several times for my back pain and he said "You have this scoliosis since childhood, The pain you are experiencing is because of mental tension and nothing to do with scoliosis"

2) In 2010, Shoulder pain and could not sleep on one side and consulted a sports arthroscopic specialist on the advice of a local orthopedic. This doctor said "I have loose joints and all these pains are normal, scoliosis is also because of loose joints."

3) In 2010, Visited a Rheumatologist as per my friends suggestion and he diagnosed me for hypovitaminosis D and found that this is considerably low so put me on medication for 6 months and now Vit D levels are up to the level.

4) In 2011, I asked doctor my doctor that my Vit D lelvels are normal still i am experiencing pain. Doctor suggested me to go for Bone scan and it came out normal.

Meanwhile all this i have been experiencing right elbow pain and even went for MRI and it came out normal..

Considering all these Rheumatologist said he will talk to Spine surgeon and come to a conclusion.
Next day he told me i have Fibromyalgia and these pains are not attributed to any of Loose Joints,Scoliosis,Low Vit D

He suggested me to take

Dolo daily one
Lyrica 75 mg twice a day

Here are my questions:
1) As i understand from fibromyalgia that people cannot go to work because of the pain..But it has been never that case with me..I go to office everyday.
2) Though doctor prescribes pain killers..I never took even one of them fearing that i should not get addicted to these at a young age..
3) What if i build muscles like Dwayne Johnson, still i will experience the pain..because fibromyalgia is all about muscles so if i have stronger muscles i can combat with this right?
4) Can i marry with this condition?

And above all these i am moving to USA this friday and i dont want miss this opportunity as i have waited for 5 years for the same. I am just fearing about the cost of medication for fibromyalgia...

Sorry guys for bothering you all with my illness history and thanks for your time.


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PostPosted: Tue Jul 12, 2011 11:58 pm 
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Well, this isn't really the topic of this forum.

Aren't you the same person that brought up a lot of the same symptoms on another thread? All the stuff about loose joints and low vit D is very familiar.

Fibromyalgia is real condition with accepted diagnostic criteria. We cannot determine in a forum if you have it or not. It comes in all degrees of severity. Most can work with it; a few cannot. Why would it affect marriage? I don't know what "dolo" is. Dolobid? If so, it is not addicting. Lyrica is a standard treatment for fibromyalgia, and is not a pain medicine and is not addicting.

Why don't you ask your doctor?

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PostPosted: Wed Jul 13, 2011 1:42 am 
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Jungledoc wrote:
Well, this isn't really the topic of this forum.


Why?

Jungledoc wrote:
Aren't you the same person that brought up a lot of the same symptoms on another thread? All the stuff about loose joints and low vit D is very familiar.


Yes
Jungledoc wrote:
I don't know what "dolo" is. Dolobid? If so, it is not addicting.


Dolo 650 is a paracetamol tablet.

Jungledoc wrote:
Why don't you ask your doctor?


Today, I am planning to talk to doctor.


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PostPosted: Wed Jul 13, 2011 2:40 am 
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My wife's friend has that. It varies greatly. This woman is about 50. Sometimes she seems like she doesn't even have it. Other times she can't really leave the house. My advice would be to get a second opinion just to be sure.


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PostPosted: Wed Jul 13, 2011 3:59 am 
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I've had a client with it, and she's one of the best testimonials i've got.

First I would second Ironman and say get a second opinion. It can be diagnosed purely because you have chronic pain with no other logical/medical explanation that the Dr can find. I'm not saying it's wrong, it just may be worth getting second opinion.

Anyway, the client I had also came along with the following delights - Arthritic shoulders, knees, hips, and ankles. Her right shoulder was extremely painful - unable to hold a cup of coffee pain free. She has a history of hamstring tears on her left side, as well as Achilles tendon tears on her left side. Left knee was significantly worse (very coincidental since her right shoulder was so bad). Back pain but nothing specifically diagnosed. There was more. Her injury/pain history is still to this day the longest I have dealt with. Filled a full page on my note pad.

I mention this because when I dealt with her I done as much research as I could. I also made her go see my physiotherapist. Every movement screen caused pain, and I never even used all of my movement screen (because I knew they would provoke pain). She seen my physio one week, me the next. Every session I prepared for her went via my physio to make sure I wasn't being an idiot. My physio is someone who's been in the industry the best part of 20 years, although has been a practising physio for "only" 10-12 years. I mention all of her other injuries because apparently, people with this condition generally come along with a big injury/pain history, too, which I think is very significant.

What i'm getting at, and regulars probably know what's coming..... She "moved" like crap. Honestly, movement is key. You really need to find someone who will help improve your movement. This may sound insignificant, but the subject is huge. There are people out there who have been pioneering this for decades. It'll probably take another decade or 2 to filter down to the mainstream. Mother Nature blessed you with a certain movement ability. The further away you stray from this throughout your life, the more pain you will be in. Likewise, the closer you can get back to those primitive movement abilities, the more likely you are to improve your symptoms. This is the basis for modern physiotherapy. You need someone who will not only assess and diagnose the pain, but also assess your movement. You may have a better chance of that in the US.

A couple of recommendations...

-Get enough sleep (seriously - if you don't get much, work on this)

-Drink more water

-If you're under mega stress, which is highly linked with this, then you need to think about managing stress better.

-Anything you do in the gym that worsens your pain, stop doing it. This is very simple to do. It either hurts or it doesn't. If it does, don't do it. Think about the next 10 years and not the next 10 weeks. So, if it doesn't hurt, feel free....

-You may be more sensitive to "sudden" changes in physical stress. So, don't dive straight into new routines or exercises. Gradually work your way into them. Sudden changes in physical stress can just cause an all round flare up just because it's a sudden change. This can be discouraging and contribute to the stress factor mentioned above.

-If you foam roll, be careful. With this condition soft tissue work can be severely painful and again cause flare ups. The tissue is very sensitive. It's supposed to be ok if you can tolerate it, and help a lot but, for most the tissue is just far too sensitive to do it.

-You need to find the right person to help. I don't think this can be done over the net at all. I rattled my brains for weeks with the above client and I had the luxury of seeing her in real life and working with a physiotherapist. As is the case with most posts like this I answer, I think it's movement related. Also, any issues outside of physical ones (stress related) will contribute to the pain, so this may need addressed, too.

When you get symptoms under control and significantly improved, the skies the limit.

KPj

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PostPosted: Wed Jul 13, 2011 12:57 pm 
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KPj wrote:
First I would second Ironman and say get a second opinion. It can be diagnosed purely because you have chronic pain with no other logical/medical explanation that the Dr can find. I'm not saying it's wrong, it just may be worth getting second opinion.

Today, I talked to doctor for 30 min and he was saying that he misunderstood the condition with hypovitaminosis D and should have been treated earlier.

Doctor was saying, In some people pain is very severe that they cannot even walk. He said i am physically very active and i will be able to do all my activities alone.

In a line Doctor was saying nothing to be afraid of but asked me to take Lyrica twice a day.

When i asked again and again regarding Fibromyalgia he said he talked to Spine surgeon and the pain is solely because of muscles not of bones.

He said my bones and joints are perfect.

KPj wrote:
-If you're under mega stress, which is highly linked with this, then you need to think about managing stress better.

I am planning to do meditation for this.
KPj wrote:
This is the basis for modern physiotherapy. You need someone who will not only assess and diagnose the pain, but also assess your movement. You may have a better chance of that in the US.

I am planning to go for physiotherapy for few weeks in U.S.

Tons of thanks to Kpj, for looking into my post and explaining everything. If you are from U.S., I will try my best to meet you.

Thanks Ironman,Jungledoc for your valuable feedback.

Thanks everyone.

Landing in U.S. on Sunday evening :smile:


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PostPosted: Wed Jul 13, 2011 1:01 pm 
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I genuinely feel for the OP. He's obviously scared

Welcome to USA.

dont take our jobs


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PostPosted: Wed Jul 13, 2011 1:34 pm 
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http://www.holistichealthinfo.com/treat ... eo-diet-by

Most of the benefit seems to come from removing gluten. Some people still have auto-immune issues while on a paleo type diet and find relief giving up eggs and/or nightshades. Supplementing with vitamin d3 and magnesium also seem to help.

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Let thy food be thy medicine, and thy medicine be thy food.~Hippocrates
Strength is the adaptation that leads to all other adaptations that you really care about - Charles Staley
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PostPosted: Thu Jul 14, 2011 12:22 am 
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Neither Lyrica nor paracetamol is addicting.

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PostPosted: Tue Jul 19, 2011 5:20 am 
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Jungledoc wrote:
Neither Lyrica nor paracetamol is addicting.


I took Lyrica in the morning after breakfast and for the entire day i feel very sleepy..I slept in office also..I dont know if it is one of the side effect.

I just reached U.S. and went to office with Lyrica taken after breakfast..Oh, God i could not resist sleeping. So i have decided to take Lyrica just before the bed.


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PostPosted: Wed Jul 20, 2011 2:45 am 
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deter_dangler wrote:
Jungledoc wrote:
Neither Lyrica nor paracetamol is addicting.


I took Lyrica in the morning after breakfast and for the entire day i feel very sleepy..I slept in office also..I dont know if it is one of the side effect.

I just reached U.S. and went to office with Lyrica taken after breakfast..Oh, God i could not resist sleeping. So i have decided to take Lyrica just before the bed.

Have you thought that you might be experiencing jet lag? Have you ever traveled across multiple time zones before?

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PostPosted: Wed Jul 20, 2011 5:56 pm 
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deter_dangler wrote:
Have you thought that you might be experiencing jet lag? Have you ever traveled across multiple time zones before?


No..this is my first travel across time zones..I will take tomorrow after breakfast and let's see..

Thanks for your time


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PostPosted: Wed Jul 20, 2011 8:22 pm 
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Just figure out what time it is at the origin of your trip, and that should explain how you are feeling. Some people say that it takes a day to recover for every time zone crossed, so allow yourself a little time. It may not be the Zyprexa that is making you sleepy.

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